She Did It! Marie’s Skydive

After a couple of weather postponements, Marie finally had the chance to do her charity skydive on Sunday, November 30th. The total raised so far in support of Batten Disease Family Association is £1125! Click the photos on the right to see Marie in high-flying action and remember, the JustGiving donation page is still open (link below) – any donations will be gratefully received for this special charity.

[pix_box icon=”quotes” bg=”#ff6600″ color=”#ffffff” border_size=”1″ border_style=”dotted” border_color=”#ffffff”]I would love for you all to help me raise lots of money for this very special cause. Zac is a special little boy who was diagnosed with this horrible disease some time ago. I feel privileged to have been able to be a small part of his journey. Thank you – Marie[/pix_box]

Please show your support by visiting Marie’s JustGiving page.

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About Batten Disease

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide.

bdfa-logoThe BDFA’s Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

For more information please visit: www.bdfa-uk.org.uk

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