She Did It! Marie’s Skydive
After a couple of weather postponements, Marie finally had the chance to do her charity skydive on Sunday, November 30th. The total raised so far in support of Batten Disease Family Association
! Click the photos on the right to see Marie in high-flying action and remember, the JustGiving donation page is still open (link below) – any donations will be gratefully received for this special charity.
I would love for you all to help me raise lots of money for this very special cause. Zac is a special little boy who was diagnosed with this horrible disease some time ago. I feel privileged to have been able to be a small part of his journey. Thank you – Marie
Please show your support by visiting Marie’s JustGiving page.
About Batten Disease
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide.
The BDFA’s Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.
For more information please visit: www.bdfa-uk.org.uk